24 de Enero Día del Síndrome de Moebius

January 24th Moebius Syndrome Awareness Day

  

El 24 de enero se celebra el Día Internacional de Síndrome de Moebius. 
Queremos sensibilizar a la sociedad sobre las necesidades de los afectados y exigir un mayor estudio y conocimiento de este síndrome, ya que incluso la mayoría de los profesionales que se dedican a la medicina lo desconocen.

Queremos que el Día Internacional de Síndrome de Moebius tenga reconocimiento oficial, y por eso, te pedimos que te unas a esta causa y comprometas a tus amigos.

Únete a la causa> Join cause !!




Donnie Lee Downs letter:

Ladies & Gentlemen,

I’m sending out this letter to inform you that we the men, women, children, and family members of those affected with the condition known as Moebius Syndrome would like to take a moment of your time to request consideration to make the date of January 24th a National / International Awareness Day for Moebius Syndrome. The date of January 24th is significant to Moebius Syndrome because that is the date in which Paul Julius Möbius, the neurologist who discovered the disorder was born in 1853.

I honorably request to begin a petition to set into motion the necessary actions to make the date of January 24th National/ International Moebius Syndrome Awareness Day...                                               
                                                  read more


Donnie Lee Downs is father of a five-year-old son with Moebius Syndrome.
 






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